i have a lot of moments throughout my day where I feel genuine pride in myself for writing this blog and posting it on the internet for all my family and friends to read. i did it. beat resistance. i faced my fear and conquered it. i chose vulnerability over hiding. what i don’t think i anticipated was how quickly and strongly resistance would fight back after my first victory. i thought writing and sharing my story would get a little easier after the first big leap, it didn’t. Along with moments filled with pride and resilience i also experience a lot of moments where i feel overcome with fear, anger, and regret about exposing a world that i’ve spent so much time and energy trying to keep a secret. i often find myself feeling unprotected, uncomfortable, and ashamed; wondering “why on earth would i share all of this with all of these people? what was i thinking?” i’ve come to the conclusion that have what one might call a “vulnerability hangover” (If you’ve read any of Brene Brown’s books this term is not new to you and if you haven’t read any of her books i highly suggest you make that happen- you won’t regret it.)
All of the encouragement i’ve received from people who’ve read my story has been inexplicably incredible, overwhelming and encouraging at the same time. All of your words have meant so much to me and i will continue to hold them close as i officially begin my recovery process on Monday. i also want to apologize for my lack of or delay in response to comments and messages, it’s mostly because it’s hard for me to find the right words to respond and convey how i feel. Although i’ve chosen to share my story on the world wide web i’m still navigating what it’s like to be authentic with each of my friends and family members individually. It’s harder than i expected, but i’m learning to be patient with and trust myself, and when to push myself out of my comfort zone as well as when it’s important to stay in my comfort zone. i’m a firm believer that monumental growth exists outside of your comfort zone, but i believe there is a balance we must find in order to grow without straining and exhausting ourselves. I believe my self-doubt and feelings of shame, nakedness, and discomfort are simply growing pains. These questions of uncertainty, new ways of perceiving myself and relating to others are giving me a glimpse into what genuine transformation looks and feels like.
i started writing this post nearly two weeks ago and have been so overwhelmed with the intake process that when i tried to put my pen to my page i often found myself asking why i even started this blog in the first place. when i’m overwhelmed with doubt and fear i look at pictures of all the little ones that i have had the privilege to know and love, i return to my list of reasons for writing and blogging, and read back on all the comments and messages of love and encouragement i received. These small inspirations don’t always give me the words to write, but they do offer me hope and comfort that get me through the day.
One of those reasons i felt so convicted to write and publish this blog was to demystify the misconceptions and misunderstandings that are so widely believed about eating disorders.
Education, advocacy and awareness are vital to the narratives of those who struggle with any kind of mental illness. Conversations surrounding mental illness in our society
are something that we have been conditioned to be silent about. The product of that silence is deeper pain, isolation, and sometimes unbearable shame felt by those who struggle. As if those afflicted by mental illness don’t suffer enough, the social consequences of the stigma surrounding these illnesses are extremely dangerous to sufferers’ mental health and social well being. In order to recover it is imperative for people who struggle with mental illness to have friends, family, and a support system who understand what they’re going through and how to best support them. For people to truly understand it is paramount that those suffering speak openly and honestly about our struggle, and continue to create avenues for others to share their stories. Vulnerability has paved the way to healing, but we humans, families, and communities must have courage to choose that path.
Some of you may have seen a few articles floating around on the internet about debunking the myths of eating disorders that are perpetuated by the media and society. I truly cannot stress enough how harmful the stigma surrounding eating disorders is for those that are struggling and striving for recovery. Below i’ve created a condensed list of my own and have included how some of these stigmas and myths have directly impacted my story. Myths perpetuate stigma which in turn perpetuates silence. Silence perpetuates misunderstanding, invalidation, and leads to those suffering into deeper suffering. I know this because i remained silent about my struggle for years and many remain silent much longer than me. Silence leaves no room for vulnerability, empathy, connection and support needed to recover from these life threatening illnesses.
Myth #1/#2: Eating Disorders are a choice that are primarily about food.
So let me start by saying what eating disorders are not: they are not lifestyles. They are not choices. They are not a product of reading too much Vogue magazine. While the physical manifestation of these illnesses is in food, body image, and self worth measured by those two factors, at their core eating disorders are about starving hearts. Food restriction, over-indulgence, or purging is used to block out or numb painful feelings or emotions. They are not just a phase. They are not for attention. They are a big deal. An eating disorder can begin with the need to feel a sense of control and slowly escalate to the point of no control. Eating disorders are the product of complex biological, social, psychological and interpersonal causes and cannot be willed away. When someone tells someone with an eating disorder to “Just eat” or “Just stop eating” they are perpetuating the stigma that an eating disorder is a choice and primarily about food.. No one chooses to have an eating disorder. NO ONE. But, recovery requires choosing to give up old habits and survival patterns and pursue healthier coping mechanisms.
I have had many people say to me, “Just eat something.” They’ve said it with their hearts full of love, their minds full of concern, and with every intention of encouraging, supporting and loving me. They’ve said it with sadness and frustration, because to love and care for someone with an eating disorder is exhausting and hard. Eating disorders are extremely complex and hard to understand for those who have little to exposure, experience, or knowledge about them. No matter how, why or when they say these words, they are never helpful. These words dismiss the biological, social, psychological, and interpersonal factors that have led me to where i am in my struggle. Comments like this leave me feeling even more frustrated and and invalidated. If eating disorders were solved simply by just eating, I wouldn’t have anything to write about in this blog.
Myth #3: Only young, white, wealthy women are affected by eating disorders.
Although i fit the description above i found it important to include this one because this misconception is extremely harmful to those that don’t fit this description and struggle with an eating disorder. Although they are historically associated with young, white, women of privilege, eating disorders are an equal opportunity illness. They do not discriminate by gender, socioeconomic status, sexuality, race, or religion. Many men (young and old), older women, people of color, and those of low socioeconomic status are not identified as having an eating disorder because of this myth which results in lack of recognition, support, and treatment and leaves people within these populations silently suffering. Shame and isolation are deeply rooted in these populations affected by this fallacy. The intersection of race, ethnicity, culture, and sexual orientation with eating disorders is an area that is in desperate need of more research, awareness, and resources. If you’re interested in learning more about how people of color, people in the LGBT+ community, people of low socioeconomic status, men and older women are affected by eating disorders and how this myth detrimentally impacts their lives i encourage you to visit:
Myth #4: You can tell someone has an eating disorder by their appearance.
You cannot tell if someone has an eating disorder by their appearance. You cannot tell if someone has an eating disorder by their appearance. i’ll say it one more time, you cannot tell if someone has an eating disorder by their appearance. The infrastructure of eating disorders is about undue influence of body weight and shape on self-worth, distortion of body image, and pervasive and destructive thoughts about ways to become thinner or to avoid gaining weight. A person below, above or at an average body weight may have all three of these features. In fact, individuals at a normal body weight often suffer more than those with an abnormal body weight because their symptoms are not validated by their appearance. The idea that body weight is an indicator of the presence of an eating disorder in someone’s life perpetuates invalidation, shame and silence.
This was my personal experience for a majority of the years that i have struggled with my eating disorder. During those first few years when i first began struggling with bulimia and self-harm only my self-harm was addressed because those scars were visible. Meanwhile bulimia was leaving even deeper wounds in places where no one could see. For the most part i remained at an average weight so no one asked and i never went out of my way to tell them. It wasn’t until my ED took a noticeable toll on my physical appearance that those around me began to notice and softly (or harshly) urge me to seek help. It wasn’t until my reflection in the mirror stared back at me, looking paler and sicker than i thought possible, that i felt validated in my illness. And even then there were still whispers of invalidation and doubt. Not until people started commenting on my weight loss did i really start to believe that this control i thought i had a grip on was withering away.
i don’t write this with intention to shame those who didn’t notice my eating disorder (I was pretty good at hiding parts of myself i didn’t want others to see.) i am writing this for those who are reading this and silently suffering and continue to suffer in silence because they are looking to their physical appearance to validate their struggle with this nasty illness. i am writing this for the concerned friend of someone who may be taking their exercise or diet resolutions a little too far. Just because they haven’t lost a significant amount of weight doesn’t mean their thoughts of being thin aren’t pervasive and destructive. Say something, ask them questions, be gentle and remember this is something they’re ashamed of and trying to keep hidden. If you are or you think someone you know is struggling there are many resources, articles and blogs out there that can help you figure out the best way to talk to them and help find them the support they need to begin healing their mind, body, and soul. i am writing this because eating disorders have the highest mortality rate and a concerningly lofty possibility of going undiagnosed and untreated. Please don’t hesitate to reach out to me. I’d love to hear your story. Silence is no longer an option. Your struggle, your pain, and your suffering are not defined by the shape of your body.
Myth #5: The main goal of recovery is to get someone to eat and maintain a healthy weight.
While re-nourishment is certainly a key player in the recovery process, it is not the only thing an individual must focus on to holistically heal from an eating disorder. Consumption of food and maintaining an average weight is not the only indicator of recovery. I maintained a relatively average weight for almost the better half of my battle with ED, but during that time i was by no means in recovery mode. Although thoughts and feelings of my eating disorder were never too far from my mind there were periods of time where i didn’t tangibly struggle with disordered eating behaviors. It was during these times that i found my battles with depression and anxiety to be more crippling. If I wasn’t struggling with my eating, i was struggling with self-harm. Sometimes, one or the other and sometimes both at the same time. Eating disorder diagnoses are typically accompanied by some other mental health diagnosis. Within my years of getting treatment for mental illness i’ve been diagnosed with major depressive disorder, generalized anxiety disorder, PTSD and Bipolar disorder. While i try not to grip too tightly onto these labels they have still each created implications when it comes to the recovery process of my eating disorder. The goal of eating disorder treatment is to treat the underlying cause of the disorder and implement safe and healthy coping strategies to deal with life’s stressors. Recovery is a multifaceted process that involves physical, emotional, psychological, physiological and spiritual acceptance, renewal, and healing.
I think it is important for anyone who is undergoing a recovery process of any kind to reflect what recovery means to them personally. For me, long term success looks like using healthy coping skills, cultivating self acceptance and compassion as well as developing a loving relationship with myself and my body. Included in that definition is also the ability to be present and mindful as I experience my day and the restoration of healthy relationships with friends and family. My hope for change as I anxiously anticipate treatment is to be present in my everyday life, continuing to face my fear of vulnerability and honesty, and to continue to increase my curiosity and awareness of myself and my emotions. All of this while eating well, treating my body with respect, and not looking to the weight or shape of my body to be the equivalent of my self-worth. To be strong not skinny. To be healthy not hungry. To be present not absent. To tell my story with bravery and listen to other’s stories with compassion and empathy. i have seen days where none of the above are possible. i have seen days where some of those things are possible some of the time. My goal is that sometimes will become more often, and more often will become most days, and most days will become most of the time.
i hope reading this has given you a better understanding of eating disorders and the way they impact the lives of those they’ve infected. i hope you move forward with more curiosity and desire to understand those you love that are inflicted with mental illness. i hope my words bring you courage to have difficult conversations and ask hard questions in search of clarity and understanding of what you or someone you love may be going through. i hope my words have encourage you to tell your story. Far too many have lived a life of suffering and died in silence.